Back Up want to hear from children and young people about their experiences of care after a spinal cord injury.
In April 2019, Back Up were delighted to secure funding from Stewart Investors to support the development of the young person’s NHS care pathway. This is a bespoke plan to ensure all newly injured children and young people receive the specialist care they deserve.
Back Up are working with Dr Fiona Barr, Consultant in Health Care, and the Specialist Spinal Cord Injury Services to create and pilot this new pathway. Through this process, they aim to refine a care journey which will focus on meeting the needs of newly injured young people and their families – from the point of injury to settling back into home, school and social life.
You can find out more about the project here.
As part of the pilot project a patient focus group is taking place to hear directly from children, young people and their families’ about their first-hand experience of receiving care.
It is vital that the voices of young people and their families’ are heard, to understand what aspects of care have been helpful, at what points in time and how this can be better improved.
Back Up are organising this patient focus group to take place on Saturday 14th December 2019 at STEPS, Sheffield. As part of the day there will be a lunch provided and travel costs will be reimbursed. There is free parking on the premises and the venue is fully accessible.
The day will be held from 10.30am-2.30pm.